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4 treatment options from my doctor, which one should I start with?
Neuroendocrine Tumors (NETs) | Last Active: Feb 13 10:06pm | Replies (90)Comment receiving replies
Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if you are getting some good treatments to deal with the tumors. You must be pleased with the shrinkage in some of the tumors as well as being considered, "stable." I'm glad the side effects from the CAPTEM were minimal.
You might be interested in participating in other NETs discussion groups on Connect. Here are some links to those discussions:
--Typical carcinoid tumor in lungs
https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/
--NET lung with liver metastasis
https://connect.mayoclinic.org/discussion/net-lung-with-liver-metastasis-stage-4/
--Bland embolization
https://connect.mayoclinic.org/discussion/blan-liver-embolization/
In these discussions, you will meet @californiazebra who has lung NETs, and many members who have metastases to the liver.
How long ago were you diagnosed with NETs? Were you having symptoms of shortness of breath?
Replies to "Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if..."
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I was diagnosed December 28th, 2024. I was having chronic pain on my left side. Went to the ER because I thought my diverticulitis was back. Boy was I surprised. I live in a rural area of Nothern California, near Chico. I was refered to a Neuroendocrine Oncologist at Stanford and my care and my team at Stanford have been amazing!