Lupus pain

I am struggling with the pain of SLE. I was diagnosed officially in 1999 and have tried numerous treatments with varying success but the pain has been more severe lately. I am currently being treated with Leflunomide, Hydroxychloroquine, Azathioprine and Tramadol for pain. I know how to soothe my pain with heat, topicals and rest, but it’s taking more of this to manage the daily aching in my body. I feel like I’m losing a battle, losing my strength and losing my creativity which is what makes me, me. Thank you for letting me voice my complaints. I rarely tell anyone how bad I feel. What’s the point?