Life after a small bowel obstruction due to adhesions

Posted by shaleenv @shaleenv, Jan 10 5:22pm

I was hospitalized on December 18th after a cat scan showed that I had a small bowel obstruction. Since then I am learning to eat smaller meals and a low fiber diet. I keep a journal of what I eat and how often I am passing stools and gas. What concerns me is that since it happened my stomach is always uncomfortable. Does this ever stop? The uncomfortable feeling? Sometimes it's a pain like when you drink to much water on am empty stomach then exercise, that sharp pain in the left side of my stomach. Does anyone else have this problem?

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Yes I have exactly the same symptoms and I too had to go into hospital 29 Dec and surgery on New Year’s Day as adhesions causing small bowel obstruction.
Now at home recovering with the same you are having ? It’s horrible and wonder will I get back to normal ?

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@shaleenv

Well I went to the mayo clinic and met with one of their GI docs and they referred me to their nutritionist but can't get me in until March 24th. Meanwhile my diet has not been great but I'm slowly learning things I can eat and chewing way more than I used to. She also ordered a new CT scan with contrast just to make sure there is nothing else going on in there. I am really looking forward to meeting the nutritionist as I have lost quite a bit of weight since this started.

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Maybe I need that scan and the dye too, I have exactly the same symptoms and I can hardly eat without getting bloated and feeling terrible

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@shaleenv

I did a follow up with my surgeon, even though he ended up not doing surgery, and he told me that it's normal. I asked him to refer me to the mayo clinic, they have accepted me but are waiting to schedule me on e they get more of my records. I also have a follow up with my regular doctor on Tuesday and I am going to tell her as well. It is more just discomfort than pain. I did a bowel test yesterday and it seems to have helped. I feel like I live in fear of food now. Everytime I pass gas or make a bowel movement I am thanking the Lord.

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What kind of bowel test is that ? how is it done ?

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She called it an enterography. They put some kind of dye in you that looks grs up your bowels when they do the CT scan. She told me this will show any other possible problems causing my obstructions or discomfort. Depending on what I eat I feel bloated a lot. Some days are worse than others. I keep a journal of everything I eat and drink trying to learn what aggravates me and what doesn't.

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@shaleenv

She called it an enterography. They put some kind of dye in you that looks grs up your bowels when they do the CT scan. She told me this will show any other possible problems causing my obstructions or discomfort. Depending on what I eat I feel bloated a lot. Some days are worse than others. I keep a journal of everything I eat and drink trying to learn what aggravates me and what doesn't.

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Yes, it's called a CT enterography. That's the scan I do every year or two to keep track of the severity of strictures in my intestines from my abdominal adhesions. It's a scan specifically used to locate bowel obstructions.

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FYI: My gastroenterologist did some research and found out that enterography can also be done with MRI. Last September I had a test called MRI abdomen enterography. I had to drink one kind of contrast material before the test and then another contrast material was given via IV during the test. Basically it showed everything that the previous CTs showed but without having to be exposed to x-rays. It showed the size of my mass, the "tethers" that extend from the mass to the small bowel loops, and evaluation of Bowel Motility: "Reduced peristaltic activity." It also showed "Small volume ascites." "IMPRESSION: Lobulated calcified 5.9 cm lesion centered at the root of the small bowel mesentery with associated tethering of loops of small bowel. Findings favored to represent calcified retractile sclerosing mesenteritis." I have also posted elsewhere in the sclerosing mesenteritis section as this is what I am presumed to have even though two sets of doctors have concluded biopsy is not possible (too risky) due to the location of the mass. I follow a low fiber, low fat, high protein diet to avoid bowel obstructions. FYI: I never had any kind of abdominal surgery prior to the discovery of this mass, so my case is highly unusual. I am now on a trial of prednisone and tamoxifen to see if it will cause the mass to shrink. Surgery is not possible for me. Best wishes to all suffers of bowel obstructions. No fun at all!

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