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4 treatment options from my doctor, which one should I start with?

Neuroendocrine Tumors (NETs) | Last Active: 20 hours ago | Replies (83)
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@cgshields1129

I have neuroendocrine lung cancer stage 4, grade 1. Liver and bone nets. I've gotten good results from capecitabine/temozolomide. Side effects for me have been minimal and tollerable. After 8 rounds I was considered stable and have had some shrinkage in numerous tumors. I do have 1 large ,12 cm, on my liver that has continued to grow. We are looking at an ablation to deal with that.

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Replies to "I have neuroendocrine lung cancer stage 4, grade 1. Liver and bone nets. I've gotten good..."
Teresa, Volunteer Mentor | @hopeful33250 | 2 days ago

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if you are getting some good treatments to deal with the tumors. You must be pleased with the shrinkage in some of the tumors as well as being considered, "stable." I'm glad the side effects from the CAPTEM were minimal.

You might be interested in participating in other NETs discussion groups on Connect. Here are some links to those discussions:
--Typical carcinoid tumor in lungs
https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/
--NET lung with liver metastasis
https://connect.mayoclinic.org/discussion/net-lung-with-liver-metastasis-stage-4/
--Bland embolization
https://connect.mayoclinic.org/discussion/blan-liver-embolization/
In these discussions, you will meet @californiazebra who has lung NETs, and many members who have metastases to the liver.

How long ago were you diagnosed with NETs? Were you having symptoms of shortness of breath?

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