1. < Osteoporosis & Bone Health

Osteoporosis and Forteo (teriparatide): What to hear experiences

Posted by ans @ans, Feb 16, 2023

Wanting to hear people’s experience with using Forteo generally , good and bad. Concerned about having to travel and keeping it at the 36-46F range. Also would like to hear from those that used it 15-20 years ago and if any medical issues have come about that are related to Forteo.

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broken13 | @broken13 | Nov 18, 2024
In reply to @jackieo1919 "Just curious how many patients had multiple spinal fractures before you started Forteo like I did..." + (show)
@jackieo1919

Just curious how many patients had multiple spinal fractures before you started Forteo like I did after lifting something heavy because my not too smart doctor never checked with a dexa scan !!

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I had 13 compression fractures before starting Forteo. I completed the full 24 months and have not fractured since. Now, 7 years later I have just started the generic version of Forteo and will do that for 6 months and then Evenity. Forteo shows bone growth at 3 and 6 months, so I am hopeful!

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1 reply
jackieo1919 | @jackieo1919 | Nov 19, 2024
In reply to @broken13 "I had 13 compression fractures before starting Forteo. I completed the full 24 months and have..." + (show)
@broken13

I had 13 compression fractures before starting Forteo. I completed the full 24 months and have not fractured since. Now, 7 years later I have just started the generic version of Forteo and will do that for 6 months and then Evenity. Forteo shows bone growth at 3 and 6 months, so I am hopeful!

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Good to hear it works. thank you.

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lynnelled1961 | @lynnelled1961 | Jan 31 4:50pm

I took Forteo for one year and one month. I had a mere 7% increase in spine bone density and sadly, I lost bone density in my hips. I went from -2.5 to -2.7. Needless to say, very disappointed. Now I'm on Tymlos for the next 11 months and am hoping for much better results.

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1 reply
lynnelled1961 | @lynnelled1961 | Jan 31 4:52pm

I have traveled frequently with Forteo and haven't had a problem. It will be fine for several hours without refrigeration.

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lynnelled1961 | @lynnelled1961 | Jan 31 4:57pm
In reply to @ans "I’m new here and am not that familiar with how to navigate this site. Now that..." + (show)
@ans

I’m new here and am not that familiar with how to navigate this site. Now that I’m in the osteoporosis group section I’ll say what I’m also really looking for is feedback on people’s experience with FORTEO , as that was recommended. (Thank you though for the info on Tymlos.) I want to hear the good , the bad, what side effects you encountered or not. And everything in between!!!! What were you transitioned to after you ended Forteo? Has anyone been on Forteo for more than 2 years as I hear that is a possibility now. Many Thanks !!!!

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I was on Forteo for 13 months. Once in a while, I would get random pains, nothing unbearable, just a little uncomfortable, in different parts of my body (shin, arm, foot). Other than those, there were no other side effects. I was nervous to start taking it, given what I had read. But like my doctor said, "If that happens, you'll stop taking it."

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milkweed | @milkweed | Jan 31 8:27pm
In reply to @lynnelled1961 "I took Forteo for one year and one month. I had a mere 7% increase in..." + (show)
@lynnelled1961

I took Forteo for one year and one month. I had a mere 7% increase in spine bone density and sadly, I lost bone density in my hips. I went from -2.5 to -2.7. Needless to say, very disappointed. Now I'm on Tymlos for the next 11 months and am hoping for much better results.

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7% is significant. Was your Dexa with the same machine as last time?

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lynnelled1961 | @lynnelled1961 | Jan 31 10:59pm
In reply to @milkweed "7% is significant. Was your Dexa with the same machine as last time?" + (show)
@milkweed

7% is significant. Was your Dexa with the same machine as last time?

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It was with the same facility; I can't be sure if it was the same machine. I'm more disappointed in the loss of hip bone density. And I don't think 7% is significant enough, especially with the hip loss

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njx58 | @njx58 | Feb 1 8:43am
In reply to @lynnelled1961 "It was with the same facility; I can't be sure if it was the same machine...." + (show)
@lynnelled1961

It was with the same facility; I can't be sure if it was the same machine. I'm more disappointed in the loss of hip bone density. And I don't think 7% is significant enough, especially with the hip loss

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7% is below the median gain of 9.7%, but it's not too bad. From the FDA sheet:

"Seventy-two percent of patients treated with FORTEO achieved at least a 5% increase in spine BMD, and 44% gained 10% or more."

That's after 18 months of treatment. So, 7% after 13 months doesn't sound unreasonable.

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lynnelled1961 | @lynnelled1961 | Feb 1 11:24am
In reply to @njx58 "7% is below the median gain of 9.7%, but it's not too bad. From the FDA..." + (show)
@njx58

7% is below the median gain of 9.7%, but it's not too bad. From the FDA sheet:

"Seventy-two percent of patients treated with FORTEO achieved at least a 5% increase in spine BMD, and 44% gained 10% or more."

That's after 18 months of treatment. So, 7% after 13 months doesn't sound unreasonable.

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I'm hoping for a better result with the Tymlos, especially for the hips.

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