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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (844)
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@joanallione

I have been on Camzyos 10 days, and wanted to thank those who were reassuring before i started. I was super nervous all the ‘you could have heart failure’ warnings in the drug company literature. I have been pleasantly surprised that i am sleeping so much been than i have for years, have more energy and walking up hills easily. I haven’t had my first echo yet. Will report back thrn! 🙏🙏🙏

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Replies to "I have been on Camzyos 10 days, and wanted to thank those who were reassuring before..."
boatsforlife | @boatsforlife | Feb 1 1:40pm

@joanallione , I'm thrilled to hear that you are doing so well on Camzyos so far - it was that way for me too. When I decided that HCM is effectively a form of heart failure (whether or not it would satisfy the medical dictionaries), that made the decision easy for me. You may experience minor setbacks here and there but don't panic - stay optimistic. It's not for everyone, but Camzyos is literally life-changing for some of us.

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