1. < Liver Cancer

Anyone taking tibsovo for bile duct cancer?

Posted by jo16 @jo16, Apr 12, 2022

After progression had started after 13 months of chemo I moved on to a targeted therapy for people with I dh1 mutation cholangiocarcinome. Treatment has been stopped or halved already 3 times due to a rash and low sodium on bloodwork. Is anyone having similar problems. How are you managing them? Thank you

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 4 7:47am
In reply to @carmita "I also ben taking tibsovo for a year,it's wonderful,keeping me stable. Did a Y 90 treatment..." + (show)
@carmita

I also ben taking tibsovo for a year,it's wonderful,keeping me stable.
Did a Y 90 treatment radiation dindt fully work. The radiologist want me to try Y 90 with chemotherapy. I have to think abaut it,wait for God guidance. I also had terrible itching and rashes,after the Y90,try many medicines,I had acquipunture, at the same time I took antibiotics ,I feel better,yet I don't know what really help me. Sorry my Englis grammar is not great,I will do my best .

Jump to this post

Hello Carmen @carmita, Thank you for the private message. I thought I would respond to you by replying to your first post here on Connect so that others that may have additional suggestions or information may also be able to respond.

You mentioned you have been diagnosed with bile duct cancer stage for two years and would like to talk with others about it. You were hoping to communicate using Zoom meetings or telephone conversations which aren't available through Connect. I thought I would share a reference that might provide some answers to questions you and others may have.

The Cholangiocarcinoma Foundation (CCF) - https://cholangiocarcinoma.org/
-- Virtual Support Groups: https://cholangiocarcinoma.org/virtual-support-groups/

Hoping this helps you find some answers.

REPLY
1 reply
carmita | @carmita | Feb 1 8:59am

God bless you.
Thank you so much.
❤️
Carmen

REPLY
carmita | @carmita | Feb 1 9:12am
In reply to @johnbishop "Hello Carmen @carmita, Thank you for the private message. I thought I would respond to you..." + (show)
@johnbishop

Hello Carmen @carmita, Thank you for the private message. I thought I would respond to you by replying to your first post here on Connect so that others that may have additional suggestions or information may also be able to respond.

You mentioned you have been diagnosed with bile duct cancer stage for two years and would like to talk with others about it. You were hoping to communicate using Zoom meetings or telephone conversations which aren't available through Connect. I thought I would share a reference that might provide some answers to questions you and others may have.

The Cholangiocarcinoma Foundation (CCF) - https://cholangiocarcinoma.org/
-- Virtual Support Groups: https://cholangiocarcinoma.org/virtual-support-groups/

Hoping this helps you find some answers.

Jump to this post

Thank you so much.Appears that the Y90 did work, the tumor shrink a littleand the liver grow some. They can perform surgery now
I'm still very nervous abaut the surgery Doctors say I'm a good candidate for Roux-en-Y hepaticojejunostomy. Sorry for my grammar.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 1 10:14am
In reply to @carmita "Thank you so much.Appears that the Y90 did work, the tumor shrink a littleand the liver..." + (show)
@carmita

Thank you so much.Appears that the Y90 did work, the tumor shrink a littleand the liver grow some. They can perform surgery now
I'm still very nervous abaut the surgery Doctors say I'm a good candidate for Roux-en-Y hepaticojejunostomy. Sorry for my grammar.

Jump to this post

Hi Carmen @carmita, I think it's normal to be a little nervous for any kind of surgery. I wonder if this discussion might help:
-- Biliary Duct Obstruction & Roux en Y Gastric Bypass: https://connect.mayoclinic.org/discussion/biliary-duct-obstruction-roux-en-y-gastric-bypass/

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