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Can PMR present in the clavicle too?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 14 6:24am | Replies (15)

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@southtexas

I feel for you, you are not alone. This is one frustrating disease. I am down to 3.5 mg and I’m trying to stay there, it’s right on the edge. I’ve had it for 8 years and I am comfortable staying on Pred for the long haul under 5 mg. I started Kevzara then backed out after one injection, scared of cancer.

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Replies to "I feel for you, you are not alone. This is one frustrating disease. I am down..."

I agree! I’m not looking to trade pain for Cancer or stroke etc..Currently I began tapering AGAIN, from 10mg and now on 9. The pain in my clavicle is starting to come back, but it’s very mild…so I’ll take it slowly and hope for the best. I hope I can get down to 3mg again, which is where I picked up this clavicle pain. I’d stay on 3 indefinitely if I could have minimal pain.
Good luck!❤️