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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: Sep 4 8:39pm | Replies (97)Comment receiving replies
Just a update on my post of Jul 10,2024. It is now1/31/2025. I am still taking the Ojjaara. I take nothing else. I've had a CBC every week, and they are all great! Who knows how long this will last, but for now things are great!
Replies to "Just a update on my post of Jul 10,2024. It is now1/31/2025. I am still taking..."
Can I ask if you’ve been diagnosed with an enlarged spleen? Thanks
Great! Ive just been diagnosed ? 72 yo. I'm planning on mirroring your approach and keeping going for a lot longer than some believe possible--though dont know yet if I will have access to the same medicines (in South Africa).
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This was an encouraging update, @snakebite! Thank you for sharing. Little moments like this can offer so much hope to others who have been diagnosed with MF and concerned about treatments!
Do you still have weekly CBCs or is your leash a little longer now between appointments?