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Replies to "Thank you again:) You said it right about not being prepared for the news! My mayo..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (18)
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Thank you again:)
You said it right about not being prepared for the news!
My mayo cardiologist hit me with myectomy and i was not prepared to hear that!
He states lets get you on camzyos and get you feeling better while we schedule surgery in Rochester!
Well im feeling better than i have in years and Rochester called me today to schedule my consult!
Surgery is planned for the reason i live 430 miles from phoenix so the constant trips that are required to stay on camzyos is a bit of a financial burden, plus it is some what emotionally of a burden because of some of the symptoms i have on camzyos, weight gain and feeling puffy and heart palpitations that have gotten better over the last few weeks.
Thank you again:)
Ezekiel 36:26
Replies to "Thank you again:) You said it right about not being prepared for the news! My mayo..."
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That is great news about getting in to Rochester. I can testify with authority, they truly are the finest in the world at what they do. Dr. Steve Ommen is the top HCM doctor in the world.
You will be in the best place to be for HOCM.
I live in far, far northern California. Close to Oregon. I had to travel to Rochester for my consult and my septal myectomy. It is worth the effort and co$t to be in the best hands for this procedure.
I was not able to try Camzyos. But I have no regrets having open heart surgery. Not one. For one, I got my life back and don't need meds anymore. It's a one-and-done deal which was appealing to me as much as open heart surgery was appalling!
We are stronger than we know. Tougher then we can imagine. I have strong faith and knew in my little hypertrophic heart it was the right thing.
It is a blessing to be accepted to Mayo!