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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: Feb 6 7:17am | Replies (51)Comment receiving replies
I'm new to this page and to the disease. I'm on 20 mg Jakafi though they are talking about reducing it to 10mg. One doctor is encouraging me to consider transplant but I am 75, almost 76 and it sounds really scary if I could have a somewhat quality life with just medication. I just don't know for how long. Too much to take in for now. I need to do some more research and learn more about my own disease. Platelets have been over 1000 but are back to 400. Now red blood cell counts are low though white is still high. I just have to trust that the doctors know what to do.
Replies to "I'm new to this page and to the disease. I'm on 20 mg Jakafi though they..."
I hope you can trust the doctors to help you. Did you have ET first and for how long?
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Welcome to Connect @chrisgray. You’re right, there is a lot to take in when you have a new diagnosis. So I’m glad to see you here in Mayo Connect where you’ll be able to talk with others who also have myelofibrosis.
To get you started, here are a couple of articles I usually share as a good primers for what’s going on in the body when there is a diagnosis of MF.
From Mayo: https://www.mayoclinic.org/diseases-conditions/myelofibrosis/symptoms-causes/syc-20355057
From Verywellhealth.com
https://www.verywellhealth.com/myelofibrosis-7562192
You might also be interested in this related discussion
- Myelofibrosis: https://connect.mayoclinic.org/discussion/myelofibrosis-24a025/
This condition is often slow to develop. I’d take it as an encouraging sign that your doctor is considering lowering your dosage of Jakafi. That would indicate that you’re responding well to treatment. It isn’t uncommon to have lower blood counts while taking Jakafi. But your doctor will be monitoring those with the continued routine labs.
How are you doing on the Jakafi…any side effects?