Does anyone have Spinal Stenosis that is extremely bad at wake up?

Posted by mick472 @mick472, Sep 26, 2024

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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@enowlkr. Yes, gabapentin, naproxen, titanzine, and spine injections steroid something. The medicine works for a minute but my legs hurt constantly.

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@hburley50

Yes, gabapentin, naproxen, titanzine, and spine injections steroid something. The medicine works for a minute but my legs hurt constantly.

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@hburley50 Welcome to Connect. I see you've mentioned a lot of drugs for spine conditions. Would you like to introduce yourself and describe your condition? Have you had spine surgery or would you be a candidate for it? What are your doctors advising?

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I’m dealing with spinal stenosis right now. Most recently I had steroid injections for L4, L5 and S1 on my left side for sciatica pain that is debilitating. I don’t like that at all as it took me 10 days after to recover. There has to be a better way to deal with this. I will refuse surgery.

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Maybe check into a Spinal Cord Stimulator. My husband has one and it works great to control his back pain. Also, you should not be having pain issues after a steroid injection. Maybe get a nerve block?

Good luck and may God bless you. Back pain is debilitating, I know. I suffered with it to the point I could barely walk, but I had lumbar back surgery and now my back pain is gone.

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I've lumbar stenosis with lumbar spondylosis L5 to L1 more so L4 L5 left side ..constant pain bladder issues
I've cervical spondylosis C2 To C7 with boney growths leftside more so servere encroachment of nerves loss of lordis Knackered I am ! Careful of how I move do try stretching twirling ankles walking lopsided leg length discrepancy yes pain off the charts most days ..sleep well it's a novel idea when I get some only to wake with pain & numbness ..but hey I get on best I can Always someone else worse off 🙃

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@terrifimmel

I’m dealing with spinal stenosis right now. Most recently I had steroid injections for L4, L5 and S1 on my left side for sciatica pain that is debilitating. I don’t like that at all as it took me 10 days after to recover. There has to be a better way to deal with this. I will refuse surgery.

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@terrifimmel Welcome to Connect. I had only one spinal injection in my neck and said no more. I preferred to have the surgery to decompress my spinal cord and fix the problem which also kept it from getting worse. I was charting the changes in my symptoms over time, so I knew how fast it was changing, and I didn't want to become disabled if I had a choice to prevent it.

With lumbar spine issues, sometimes there can be overlapping symptoms that are related to pelvic alignment and muscle attachments to the spine. It can be confused for a spine problem, or you could have both issues. It's worth figuring out where the pain is being generated, and I presume that is what your doctors are doing with injections.

You can find several articles at this site. https://mskneurology.com/category/low-back-pelvis/
This article addresses symptoms that masquerade as a spine problem. https://mskneurology.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

Lumbar spine surgery is a big decision and a more difficult recovery than my cervical surgery. I'm glad I did it, and I got the coordination back in my arms.

I also have to tell you; I was scared of surgery. I worked a lot to overcome that, and it was worth it. It changed my life. I no longer fear a medical diagnosis, but instead, I can embrace it and advocate for myself, choose my future, and I 've learned enough to know if I have a competent doctor on my case.

Is your stenosis mainly in the nerve roots or is it in the central spinal canal? Now that you are past 10 days recovery from the injection, has the injection helped your pain?

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@jfsherley

I’ve had severe spinal stenosis for yrs and the thing you must have is a mattress that’s going to hold your spine up straight while you’re sleeping and a regime of stretching in the morning and at night if you can. I take Tramadol Gabapentin and Tylenol 4 times a day . And you might want to go to pain clinic to try injections for your back they haven’t worked much for me but they do for some. Or you can opt for surgery
Hope that helps good luck

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Thanks. Injections did nothing for meb

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@mydogsbestfriend

Thanks. Injections did nothing for meb

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They didn’t help me either the only thing that helps some is bringing your knees up to your chest so that you stretch that stenosis. Do it at a least 20 times every day

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