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Thank you! And what a blessing it was for me to serve on one of 4 battleships the Navy had at the time! USS Wisconsin BB64:)
it sure sounds like you come from a family that has some great military history:)
Yes just started going to mayo in phoenix on Dec 4
So yes im new:)
Its been nice to see such a great support group! I’ m really fortunate to be able to share my information here with others!
I really wished there was another way to reach out to others who have experienced what so many people on this platform have experienced!
So many people like my self have gone under diagnosed or misdiagnosed without knowing truly whats wrong!
We all have a story to tell and it needs to be shared to those that feel helpless!
Thanks for reaching out
Replies to "Thank you! And what a blessing it was for me to serve on one of 4..."
PS: I love your last line "We all have a story to tell and it needs to be shared to those who feel helpless." That is the exact reason Mayo Clinic Connect is here and you said it so well!
PSS: One of our esteemed Mentors, @johnbishop also served in the Navy I believe. He has some stories too. So glad you are here!
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My dad was on the YMS 302, a mine sweeper. They were the only wooden ships in the Navy. The mines wouldn't stick to them! No where near the mega sized battleships! How was the food?
He had some stories to tell, and other stories he took to his grave.
All who serve are worthy of our respect. Like the motto: All gave some. Some gave all. It is so true.
I'm pleased to hear how positive your experience here on Mayo Connect is.
I feel the same as you. I was misdiagnosed for several years with four or five different heart conditions. None of which I had. When I finally was correctly diagnosed at Mayo Rochester (affectionately known as The Mother Ship!) I was stunned.
First at what I had and how long I had been misdiagnosed, and second that I needed open heart surgery! I was not prepared for either of those things in one visit. It seems like a common thread in the HOCM community. Perhaps it is getting better as more and more patients are coming on board who are on Camzyos.
Mayo Clinic Connect is one-of-a-kind. No other patient forum exists like Connect. It is a blessing to be able to virtually connect with other people who have the same conditions and we can learn from each other. And it doesn't matter if you are a Mayo patient or not. All are welcome.
You never know who is reading what you have posted and how you may impact someone out there. I share Mayo Clinic Connect with many people I come in contact with. It has been such a wonderful place to feel safe to share my story and where others can identify with it.
So feel free! Go ahead and pass your good experience forward and share with all your friends and family or even strangers! You never know the impact you may have!
I've never been to Mayo Phoenix, but I have someone who just had a liver transplant there two months ago. They said the place is fantastic. I would expect nothing less from the Mayo.
Aside from you having HOCM, you sound pretty active and physically fit. That helps for sure.
You can be an inspiration to others! Keep us posted on your progress Sir 🙂