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← Return to The Patient Portal—Help or Hindrance?
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The Patient Portal—Help or Hindrance?
Just Want to Talk | Last Active: 17 hours ago | Replies (258)Comment receiving replies
Mayo now has a patient friendly report format where technical words are highlighted, and one puts the cursor over the word and a definition pops up. Works well.
Yes, it is a choice if one wants to look at reports before seeing the doctor. Unfortunately, one can not rely on the doctor telling the patient everything on the report. I have had two issues I had to follow up with other specialists and the specialist ordering the test did not mention to me.
Replies to "Mayo now has a patient friendly report format where technical words are highlighted, and one puts..."
@vic83 It comes back to how good your oncologist is. and whether it’s safe to trust him/her 🤔
I have a wonderful oncologist and we’ve been together for 4 years now. He’s also a professor in the medical faculty at our top university as well as practising. With my rare appendix cancer he’s proven to be just the specialist for me.
He’s helped me with all sorts of referrals from day one - from diet and exercises to pelvic floor muscle scanning after debulking surgery, yearly colonoscopies, a possible melanoma biopsy after one surveillance scan, a specialist cancer therapist. Etc.
I’m comfortable he’s invested in me and across my health and well being as a package.
Now I’m NED we’re in surveillance stage. Quarterly tests have just moved to 6 monthly PET-CT scans with blood tests remaining quarterly. I know I can phone him up and he’ll bring them forward if I feel I need to.
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Unfortunately, I've had similar experiences of doctors failing to mention important info on test results. And it was only after I pulled up the report to read it for myself that I became aware of those omissions by the doctors.
You just can't always blindly depend on the doctors to fully inform you.