← Return to Acute myeloid leukemia (AML): What can I expect?

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@loribmt

Welcome to Connect, @mmh515. What a harrowing story about your AML journey. That type of leukemia can creep up slowly and then Wham, it comes on like a speeding locomotive out of control during the last couple of weeks. I’ve been there myself and it can be one heckuva a nasty beast to get under control. But you persevered through some brutal chemo to achieve remission and have been healthy for 14 years! That’s outstanding success and it may not be over. The only way you’ll know is to call your hematologist or primary care physician to have some bloodwork done.

I understand feeling scared…no one wants to hear that they’re out of remission. But you’re getting way ahead of things and letting fear take over. I think a reasonable plan of action would be to get a check up. Because not knowing is equally as stressful for you! Sometimes just the action of moving forward can bring a sense of relief.

If there is something going on, then you can make informed decisions with your doctor with how to proceed. There have been new, less traumatic treatment options developed since 2011 for relapsing AML patients. So please, don’t toss away 14 great years without a fight. At least find out why you’re not feeling the greatest right now. It may not be related to your leukemia at all.
What type of symptoms are you having?

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Replies to "Welcome to Connect, @mmh515. What a harrowing story about your AML journey. That type of leukemia..."

So, my main symptom is tired all the time, and achy. Most of my symptoms would suggest I have low iron. In any case, I have moved since I last saw the oncologist. I called my former oncologist for a referral. Just waiting to hear back from her nurse. Even if this is nothing it's past time to see an oncologist and get bloodwork. Thank you for the encouragement and your comment.
mmh