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DiscussionEssential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)Comment receiving replies
Replies to "Hello 1pearl, In an effort to identify the cause of my platelet reduction, I have been..."
Hi michele tx,
Like you, my platelets have gone down with no treatment. I do practice a healthy lifestyle with Mediterranean diet and daily exercise. I need to work more on lowering stress as I react to that. I do yoga which is helpful and pray too. I only learned of my high platelet problem on December 11, 2024, so I was not planning on jumping fast into taking such a nasty toxic product which Hydrea is. I am glad I have not as my platelets dropped 411 units since then doing nothing as I had a blood test with quick results yesterdays ordered by my O/H when I asked for bone marrow biopsy. This whole blood cancer area is very confusing.
I hope both of us continue to have reduced platelets and good health.
Have a blessed week.
I believe that in 2004, the only way to diagnose ET was with a bone marrow biopsy. That's about the time my dad was diagnosed.
I wonder if you might have been misdiagnosed and actually had secondary thrombocytosis? Maybe a spontaneous remission? Unexplained things can happen. Hope your doc learns from your case in ways that will help all of us!
There is an inflammatory component to ET that diet and exercise can address. It doesn't reduce platelets for any patients I know, but it can help a lot with symptoms and reduce overall clot risk.
Sadly, there are many individuals and clinics out there claiming to cure all types of cancers with "natural" treatments, which turn out to be massive doses of vitamins or supplements (so not exactly "natural") that are very expensive and don't work.
I tried CBD oil for 8 weeks for sleeplessness when that was the big craze. Told GP I was doing it. She gave me tips. I researched it, purchased from a reputable compounding pharma with third-party testing. Gave myself the recommended dose. Ended up with acid reflux and still couldn't sleep. Doc said she wasn't surprised.