Plaquenil Helped me a lot I also use biotene mouthwash, dry mouth spray, and toothpaste. All help. I also use a high-fluoride prescription toothpaste prescribed by my dentist and have more frequent cleanings to prevent dry-mouth cavities. All together, my dry-mouth symptoms are greatly improved. I have Mixed connective tissue disease with mainly sjogrens symptoms.
I have connective tissue disease (ehlers danlos) with Sjogrens running in my family. Did the plaquinel help your burning mouth specifically or just the dryness?
It’s most likely small fiber neuropathy which is probably autoimmune. Have you had any autoimmune lab work done? Do you experience any other neuropathic pain?
Yep we did those from the beginning with the legit Chinese diameter needles and all the other points in the study. I’m so happy it worked for you though, thats great. I went for about 10 weeks and then gave up. I also have small fiber neuropathy with affects my whole body but the burning mouth was and continues to be the worse of it. Had it about a year. Was there anything else you did in addition to the acupuncture that may have helped?
Sorry, nothing else specific to BMS was done. Previous to the acupuncture, different docs had prescribed various things, none of which worked, and some made it worse, like steroid mouthwash. Something that I had already been doing, which helped my oral Lichen Planus, was switching to a toothpaste without sodium laurel sulfate. Pronamel and Parodontax started it, but now Crest and Colgate have versions, and there are others. Don't know if it could help BMS, but it was in a similar timeframe for me.
I have connective tissue disease (ehlers danlos) with Sjogrens running in my family. Did the plaquinel help your burning mouth specifically or just the dryness?
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I have connective tissue disease (ehlers danlos) with Sjogrens running in my family. Did the plaquinel help your burning mouth specifically or just the dryness?
It’s most likely small fiber neuropathy which is probably autoimmune. Have you had any autoimmune lab work done? Do you experience any other neuropathic pain?
Sorry, nothing else specific to BMS was done. Previous to the acupuncture, different docs had prescribed various things, none of which worked, and some made it worse, like steroid mouthwash. Something that I had already been doing, which helped my oral Lichen Planus, was switching to a toothpaste without sodium laurel sulfate. Pronamel and Parodontax started it, but now Crest and Colgate have versions, and there are others. Don't know if it could help BMS, but it was in a similar timeframe for me.
Only the dryness. Thank God I never had burning mouth.
Not sure if this helps but my doctor believes this is a Vitamin D deficiency so my mum started taking vitamin D and hasn't had a problem since.
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