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Diagnosis: Idiopathic Peripheral Neuropathy and Restless Leg Syndrome
Neuropathy | Last Active: 14 hours ago | Replies (13)Comment receiving replies
Hello, @heisenberg34 ,
I was diagnosed with distal symmetric axonal-demyelinating sensorimotor peripheral neuropathy in 2021 after years of severe pain during the night. It would start around 9:30 or 10:00 p.m. and at its worst presentation I could do nothing but literally scream into my pillow. Pain that severe usually lasted "only" 10 minutes or so.
Now, after 4 years of P.T., a number of lesser-known but very effective therapies, and the right combination of Tramadol and Pregabalin, my symptoms are more in line with what you are describing. About a year and a half ago restless leg syndrome showed up and I've been on Ropinirole for it (very effective). I'm 78, live in Iowa, and maintain my own home.
I pray you will find the therapies that ease your symptoms and restore muscle strength.
Peace, Barb
Replies to "Hello, @heisenberg34 , I was diagnosed with distal symmetric axonal-demyelinating sensorimotor peripheral neuropathy in 2021 after..."
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Wow! It would take me ten minutes to say what you were diagnosed with. Sounds horrible. I am 77, but still trying to come to grips with the fact that I am elderly(!) and in poor physical condition. Just four years ago I was cycling 30-50 miles a week. Skiing a couple of times a week. Then things changed in a heartbeat.
K
Just a year ago I was doing a lot in and around the house. Not able to do much right now. I feel bad for my wife. We had planned on traveling and camping. That’s pretty much gone.
What kind of PT exercises did they have you doing? I just started and I’m afraid my therapist may just continue with the standard exercises. When I do even gentle exercises, it ramps up my pain to where I have to stop. Did you experience that and just fight through the pain?
Hope you continue on the road to feeling better.