Newly diagnosed and scared

Posted by Julie H @jkhagen1, Dec 20, 2024

Hi folx, my "Thanksgiving Eve" tongue biopsy revealed stage 1 HPV squamous cell carcinoma. I understand it's treatable and the 7 weeks of chemo/radiation sounds really scary. How did you cope? I am confident I have a great care team, just want to hear from real people who might have some wisdom to share. Peace be with you.

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calenbd | @calenbd | 4 days ago

In reply to @jkhagen1 "Meh. Getting used to the routine and the side effects. One day at a time! (5..." + (show)

I know the routine is not fun and it will most likely get worse before it gets better. However, there is light at the end of the tunnel! Have faith in the process. I’m living testimony that it works! You’ll get your life back! Lean on friends, family, and whatever you believe in to get you through (in my case faith in God).

Jody aka mojo244 | @mojo244 | 4 days ago

In reply to @jkhagen1 "Thank you so much for sharing your story. Because of where the tumor is, they believe..." + (show)

I am a bit over 8 years out from stage IV and I’m 62 now.
Though I have many disabling side effects I’m still alive!
Make sure you’re open with your care team about your stress, I kept my personal feelings to myself and I really shouldn’t have.
If you develop Tinnitus after your first round of Cisplatin tell your care team …I didn’t say anything and now I’m battling tinnitus and chronic migraines for over 8 years now.
I can pm you with a complete run down if you like?
Keep the faith and fight the good fight!

MOJO

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