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Polycythemia Vera and low iron

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (5)

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@finntastic4

I started on HU after turning 60. My Hct shots up fast if eating iron rich foods or take supplements with iron (happened once accidentally). I was also wondering if anyone on Besremi or Jakafi still require phlebotomies and therefore continue having low iron.
All the contradicting information on taking /not taking iron is frustrating. It definitely affects my exercising, but got to keep moving!

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Replies to "I started on HU after turning 60. My Hct shots up fast if eating iron rich..."

I also suffer from low iron after many phlebotomies. I had an iron infusion one year ago and
it worked for a while. I now take iron 3x a week. I have polycythemia but not Jak2. The iron appears to be working. The symptoms of fatigue make life very difficult.