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Need advice for my situation

MAC & Bronchiectasis | Last Active: Jan 30 8:26am | Replies (8)
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@sueinmn

@vegita182 Your pulmonologist is following the accepted protocol for treatment - one positive sample is an "indication of possible infection" and with the low amount of CT evidence of active infection it ²does not meet the criteria for treatment.
Here is the video from NJH that explains:


As for waiting 12 weeks, MAC is VERY slow growing - I know someone now who is being watched for 5 months before considering treatment. And the low dose CT is the standard for diagnosing infections and Bronchiectasis.

From your description of symptoms, it does sounds like an infection of some type, has your sputum been tested for other infectious agents like pseudomonas or fungi?

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Replies to "@vegita182 Your pulmonologist is following the accepted protocol for treatment - one positive sample is an..."
vegita182 | @vegita182 | Jan 28 10:32pm

That I’m not sure of. I’m not even sure why he thought to test for mycobacterium avium. I will call his office and see what they say. I can’t think of any other infectious causes that would last a year other than a slow growing mycobacterium. I’m assuming if he tested for MAC he also tested for TB?

I guess I just feel urgency in that I don’t want any further lung damage as I’m lucky enough to to have no evidence of disease. I’m assuming my 2 nodules in my left lung aren’t related to MAC

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