Alternative treatment instead of Prolia injections

Thanks, your response is encouraging to me.
I am in the middle of recovering from an L3 fracture but the thigh pain keeps me awake at night.
It’s the not knowing what it is or what is to come.
Thanks again.

@normahorn yes I cannot do most strength and balance type classes or those elastic band exercises. Lifting is very limited. While osteporosis and fractures are part of that picture, cervical/lumbar spinal stenosis, myelopathy, radiculopathy, neuropathy and documented spinal cord damage are certainly obstacles. That is a lot of "opathy's"!

Yes. I was on fosamax and developed thigh pain. Once I stopped, the pain stopped! I believe all these meds have this same effect. Good luck with any of them.

My endocrinologist suggested prolia almost two years ago. I have put her off because of the side effects. I'm not willing to risk them. She said and everything I've read says once you start you're committed to receiving for the duration. I think it's 2 injections yearly for 3 to 5 years. I also read once stopped, you can suffer bone breaking from the prolia. She offered recast, not much better alternative. I'm taking my chances and pray I have no falls that result in broken bones! I've had 3 falls, nothing broken! I have osteoporosis, osteoarthritis, spinal stenosis, and more. We are all individuals. Good luck.

Hi, I had Atypical femur fracture of left thigh last year. It's quite painful and takes time to heal on its own. Biphosphonates, such as fosamax, can cause this type of fracture. Stopping the drug stopped this side effect. Talk to your doctor. Good luck.

I'm so glad this is working for you! I do strength training along with HRT and Prolia. My t scores are in osteopenia territory and have been that way for a while. I wish I had started strength training pre-menopause and kept at it. Maybe I wouldn't have needed Prolia, Fosamax, Reclast, etc. You're right. Strength training is not for sissies. I know guys who can't do what I can!

@tik it's bisphosphonates like Reclast that are limited to 3-5 years. Prolia studies now go up to 10 years and may continue to extend duration.

I am surprised at the posts that indicate choices limited to anti-resorptives like bisphosphonates and Prolia. For any significant osteoporosis, anabolics like Forteo or Tymlos are good first drugs, or Evenity, which is both anabolic and anti-resorptive. Maybe recent posters have osteoporosis that is mild.

Anti-resorptives may affect the effectiveness of anabolics .

Reclast is prescribed after Prolia to manage rebound increase in fracture risk and loss of bone density.

McCormick ("Great Bones") and Ben Leder MD (YouTube videos) say that Tymlos and Forteo don't work well after Prolia. I am not sure if there is a period of time between Prolia and those meds that makes them effective again.

Thanks again for your encouragement. I did make a call to my endocrinologist and went for an x-ray same day. AFF was ruled out and that helps me feel better.
I understand that an incomplete fracture is not always visible on an x-ray. With this knowledge I will keep in touch with this discomfort and continue to monitor my experience.
You were very helpful to me!

Hi, @munday -- I saw you posted a reaction to one of my old posts about taking Tymlos. I'm glad it helped you, but I feel obligated to say my Tymlos journey was ultimately unsuccessful. I never got beyond 4 clicks-- I couldn't tolerate the side effects-- and also, I only lasted 6 months. Besides all the typical side effects you know, my hair fell out. Not all of it, and not in patches. It just thinned by about half and that was the last straw for me. It is nearly 18 months since I stopped Tymlos, and my hair has not grown back. Tymlos has given a lot of people a lot of bizarre side effects. Don't discount that your thigh pain is indeed caused by Tymlos, and I hope you have a doctor who doesn't dismiss your pain by saying, "that's not on the list of side effects." Hair loss isn't either, but the Tymlos nurse confirmed to me that she saw it in many other people. I retreated back to Actonel, but now my endo wants me to go on Evenity. Terrified, of course. Putting it off for a while.