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Essential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (115)Comment receiving replies
Hi again nohrt4me,
I like the idea idea of starting slowly if it is found I truly do have ET.
I have one question for you to please explain to me. I know you have had ET for a while and you also mentioned that your dad had it. My question is how your Dad and you both had it since my O/H said it was not genetic but rather and acquired gene mutation. I still do not have any of the gene mutations identified in my case nor any symptoms and now I have been diagnosed with White Coat syndrome and not hypertension which I already knew.
I do believe my O/H does treat on platelet number alone. I wonder why my platelets are decreasing on there own with no treatment. She did not answer that.
Thanks so much for listening and explaining so much to me.
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Some families do have several members with ET or another MPN. Researchers think that the mutation itself is not inherited, but possibly a tendency to mutate if exposed to the same triggers is inherited.
Some decreases in platelets are not significant. Docs are looking at the average over a year or two. Mine usually stay between 415 to 475. Once every year or two, I might spike into low 500s. If counts stayed in the 500s and started spiking into the 600s, I expect my HU dose would be increased.
But the docs are looking at where your platelets are trending over time, not worrying about small up-and-down fluctuations.
I don't know what kind of drop in platelets you're seeing.