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I do and am amazed by the liaise faire response from MD. NO treatment just annual blood test. Also the Blood results at times do not show the M spike. And then they do. This is going on since 2019. That was first appearance. Then it disappears only to return with a higher M spike two years later. Very frustrating as no one takes this seriously. where to go and what to do?
Replies to "I do and am amazed by the liaise faire response from MD. NO treatment just annual..."
@sunsetchris As @pmm Patty mentioned, MGUS usually is asymptomatic, so our doctors take a more laid back approach to it all. The greatest percentage of MGUS patients do not progress further to SMM [smoldering multiple myeloma]. It was explained to me that treating someone right away can create an issue down the line, as the patient is then on a very long road of treatment and it can become a situation of overdoing it.
When you have confidence in your hematologist oncologist, talk with them, discuss your own particular situation and what it means to you.
Ginger
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@sunsetchris
I don’t think that it is common for physicians to be dismissive about MGUS. It is considered to be a benign condition with a few if any side effects. It is a precursor condition to more serious blood cancers. Because the rate of progression is so small, it is not something that is treated until there is a threshold of concern that is met, which is a measured response to blood analysis.
Personally, with complete blood analysis and scans on a regular basis, I get better preventative medical care than anyone I know. If there are signs of progression, there will be a measured treatment response which will be appropriate in accordance with the type and level of risk associated with the threat.
I think it’s important to have these discussions with your physician. If you are feeling concerned because you don’t believe that the medical response is aggressive enough, that’s a discussion that is best had with your physician. You can also ask for a second opinion.