← Return to what does the community consider a normal SED rate for GCA/PMR?

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@anitallr

I agree with everything said about “normal”ESR stats, they don’t exist.
I was diagnosed with PMR in 2014 and started on 10mg of prednisone. While on the same dosage, I started developing symptoms of GCA and my ESR was only 29. I knew all the symptoms because I worked in Ophthalmology and saw patients who lost sight due to not realizing they were sick and did not get treated.
My PCP argued with me that I couldn’t have GCA because of my normal ESR, and because I was already on prednisone. After a few weeks I finally told him I didn’t want to go blind, so he sent me to a Rheumatologist. The Rheumatologist argued the same thing but consented to order a temporal artery biopsy. It came back positive! He now treats me for my symptoms and not the blood test results.

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Replies to "I agree with everything said about “normal”ESR stats, they don’t exist. I was diagnosed with PMR..."

Hi, anitallr. What symptoms for GCA were you having that were concerning? Were they severe? I’m actually having some improved joint pain but also having some transient and mild jaw pain that concerns me. Most of what I’ve read about GCA pain describes it as pretty severe.