Prolia discontinuation

Posted by czauderer @czauderer, Dec 12, 2024

Hi, due to an osteoporosis diagnosis, I took two injections of Prolia six months apart and due two side effects, I want to come off of it. I do not want to transition to a bisphosphonate or remain on one. How do I take myself off of Prolia safely? I am not getting a straight answer from my doctor.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@dawnranagan

I recently hear a talk that the doctor said 3-5 years max

Jump to this post

There are many opinions, but I like facts when I make decisions. Especially regarding my medical care. My bone density scans continue to show that I have osteopenia and good T scores. I haven't experienced any fractures and have a very active lifestyle, including Pilates several times a week. I will see what medical evidence my new doctore presents and go from there.

REPLY
@jheieck

No, I have not found an alternative yet. I switched from nurse practitioner/bone specialist to an endocrinologist due to elevated parathyroid and calcium levels in my blood. The bone health specialist was going to switch me to HRT, Evista, to transition off Prolia, as its my only viable option due to the fact that I developed ONJ last year during an implant procedure which had to be reversed. I cannot take what you are taking because of that. Waiting to see if my osteoporosis is related to parathyroid tumors and once that's eliminated or confirmed, we can start to figure out what I can transition to in place of Prolia. But for now I am in limbo. I have been on Prolia almost 7 years and I believe I have other side effects from taking Prolia, including high blood pressure and high cholesterol and severe lower back aches, but I can't prove any of it conclusively. I want to get off Prolia but I don't know if and when I will be able to do that. In the meantime my tooth problem also is unresolved.

Jump to this post

Had you stopped taking your prolia before the implants? I have been off of Prolia for a year and have had bone graft and scheduled for 2 implants on February 11th. I am worried about ONJ.

REPLY

You should be okay but I'm not a doctor. I did not go off Prolia. I had bone graft about 3 months after my shot. And then I had my implants subsequently after I healed, also about 4 months after my last shot. I was told I needed to wait another month and it might have worked, but now I have to start all over again cuz I'm taking Prolia still.

REPLY
Please sign in or register to post a reply.