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Meningioma: Anyone else? I'm frightened
I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.
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Hi sorry how long was you recovery
Helenbrown: It could very well be that whatever intervention is suggested will not be able to be scheduled until after your birthday trip. You didn't mention if your tumor is a particular type of tumor called a meningioma. If it is a meningioma, which is usually benign and slow growing, I would think your birthday trip would be fine unless the meningioma is pressing on a structure that is compromising your balance. You sure wouldn't want to suffer a serious fall. You should be able to talk to your doctor or his medical assistant for advice.
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1 ReactionIve been told that it's about 2 inches big with swelling ive had this for a while apparently ive had a number of symptoms like left leg goes dead i get headaches and my balance hasn't been good for a very long time but they dont seem in a hurry to contact me after my second MRI like they was for the first they called me 3 hours after having the first.
I went on holiday for 7 days in November and I was fine, I just want them to help with the swelling to ease my headaches and they can do what the want when I get back
helenbrown: I would take comfort in the the fact that, as you said, "they don't seem in a hurry to contact me..." Seems to me if the scan showed something super concerning that needed to be addressed immediately you would have been contacted by now. Keep communicating with the office to get what you need to ease the headaches so you can enjoy your trip.
Thank you for your reply.. I'm still trying to get some solutions even after they found one in the cavernous sinus but they reassured me it has not changed since 2022 yet in the recent months my double vision and loss of vision has gotten worse. They have no action plan in place other than to watch and wait. I feel like I'm fighting a losing battle and fear of losing my eye sight.
My son lost vision in his left eye (at age 12). At age 27, he experienced worsening symptoms that finally led to the diagnosis of 3 meningiomas that had been growing for years. He had 30 proton beam radiation sessions, and now we wait to see if the tumors are dead. Due to the location of the tumors, they are inoperable. Unfortunately, at age 12, when he first had the MRIs, they missed the tumors. I regret that we didn't push more to find a diagnosis. He's had many health issues over the years, and now we are learning why. It's been difficult.
Hi @mkoch and @gammaqueen, I hope you can help me with some insights. I had an appt for GK last week. The neuro oncologist said that it is technically doable since my meningioma is 2.5cm but that he recommended me normal surgery due to my age and health, I'm 46y and healthy. If I don't want to have the normal surgery he would do the GK but in 5 sessions, a very conservative approach. I understand he is trying to minimize edema since the tumor is almost at their maximum and a higher dose of radiation would be needed. Why is this? Isn't GK recommended to younger people? If so, why? Is it because of the radiation side effects? I was confused that his first recommendation was normal surgery. Thanks.