Waldenstroms Macroglobulemia

Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a bone marrow biopsy last week along with CT Scans as she found swollen/enlarged lymph nodes in my neck, chest, groin.
Still waiting for all the reports and the gene typing before my appointment next week, but have some questions for those of you who may know more that can help me. The CT scans do not show masses but she felt them plus my neck, under arm and groin are tender and painful. Has anyone else experienced this? Also, still no night sweats but have lost weight and no appetite. I know she will answer the questions, but just trying to understand more. Thanks ---appreciate any comments or your experience.