So I started in this journey back in 2017. I have terrible balance, walk like a drunk, have nystagmus and double vision, blurred vision, clumsy, choke on saliva. I have had numerous falls but pride myself on easily getting back up. I use a rollator as canes are inadequate now.

I had a totally different experience last week. I didn’t really fall…it was more like I melted into a heap. I could not get up. It wasn’t that I lost my strength, it’s just that I no longer had control of my arms nor my legs. They were like rubber. No ability to grasp nor propel myself. My husband tried to get me up but all I ended up with were fingerprint bruises on my body. A neighbor successfully got me into a chair. Since I was still a ‘wet noodle ’ my husband called an ambulance for me. He was worried. I told him they would do nothing for me. Hours later we came back home. I was still in this sad state. I couldn’t drag myself up the 3 steps to get in. I tried and tried and after half an hour and having absolutely destroyed the skin on my legs and knees, I was inside. (Our regular home does not have any steps. We winter in a warmer climate in a modular home with steps). Our solution to getting me into the bedroom involved my husband literally dragging me by my ankles down the hall. This lasted at least 6 hours.

My question for those who have experienced this ‘noodle’ sensation. How could I do better next time? How could I improve the situation? (I am 5 states away from my neurologist until May. I am back to my usual wobbliness now)