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DiscussionMy PD life is confusing - this is not easy. How do I accept it?
Parkinson's Disease | Last Active: 2 days ago | Replies (29)Comment receiving replies
Replies to "Congratulations on the progress you have made, @bruizersmom. I can understand your, "primary complaint." The after-effects..."
Not a stroke, although the mental aspects of the seizure were evidently quite similar. In the hospital, they treated me basically the same way they treated stroke victims. They, too were very vociferous and demanding of help. When I was transferred to the nuse's station (where I was placed in an overstuffed chair and jammed under the counter at the station (to deny me mobility and to stop me from hitting the nurses' call button), I watched as the station nurse: when the p[hone rang, she leaned over too see if one of her stroke patient's light in the hall was on, and she would lift the phon e and drop it back, not saying a word to the poor woman begging for help. We were in what was called the critical-care unit....my letter of complaint to the hospital took the word of the nurses on duty: my words were false, exce[pt for my claim that the nurses referred to me as crazy to on-coming nurses. Oh, whoopee. I was offered at-home nursing care. That nurse may have been the one that left my condo screaming when I had another seizure, right in front of her. Do I want hospitalization? Never again. Do I want home nursing? That's simply funny. The one nurse (RN) who showed up to do my pill cas for me had me sit by her side and dictate directions (and correct her) for filling that case, even tho each bottle was marked with condition it was for, Doc who ordered it, and exact times of day when I took it. Says a lot for the professional training they had... Someone asked "how did I get thru it all, and how/where did I learn my coping skills. HAH. I had to find them for myself...who else could I rely on????????????? And my Parkinson's had just amplified all of the seizure crap I had to endure. Finding a doctor (nightmare), getting myself "recognized" by my new state, Connecticut, transferring prescriptions, fighting to get off in-active meds.....
I'm afraid you have no real concept of all I went through. But I do know, DO KNOW, that those on my floor were not looneys or just and old idiot...they were normal people having a NORMAL reaction to a medical crisis and being stuck with the inability to communicate got branded and dismissed by the medical profession - for what that's worth.