Hi. I have been on HU for 2 years since 2023. My biggest issue is dry skin and itching on my feet, hands, body, and eyes. I use eye lubricant (Refresh) and had to move up to Restasis for dry eye symptoms. I use both Refresh and Restasis several times per day. For itching, I take a daily Claritin pill per day. For my feet, I use Urea Cream and alternate with Vaseline and Cetaphil. I had some hair loss, but it leveled off and my hair looks fine. Overall, most people have no idea that I am dealing with ET/Jak2. I also take Biotin for skin and nails and Tumeric for inflammation response. Check with your doctor before taking any meds, vitamins, or herbals. I take no painkillers since I am taking the 2 baby aspirin per day, AM and PM. HU makes you thirsty so stay well hydrated with water. I also have low iron but am not anemic, so I take daily iron supplements per my doctor. It has helped with my energy level. In the beginning, I had some fatigue, but as my blood numbers got better, so did the fatigue. Eat healthy, avoid processed foods including sodas. I traded soda for green tea and it was an easy adjustment. I avoid red meat and eat a healthy heart diet, mostly Mediterranean. I do moderate exercise and some yoga. PT is a good option to help you with aches, pains, and flexibility. Wishing you the best!
Karla
P.S. Here I am with Hubby and 2 of our 5 grands this past Christmas. Living my best at 71!