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Plaquenil and PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jan 26 6:28pm | Replies (29)

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@pmrsuzie

Plaquinil has been suggested to me by more than 1 physician. After reading about possible side effects , I have ruled out taking this med. Although not a common occurrence plaquinil can cause retina damage.
Many years ago I was diagnosed with dry AMD. I started a course of AREDS vitamins. Some years later I had a visit with a retina specialist who changed the diagnosis to macular dystrophy. More specifically adult onset vitelliform dystrophy. I have bounced back and forth between my ophthalmologist and the retina specialist. Every 6 months I need an appointment. I already have vitelliform lesions. It was suggested asking the eye Drs about taking plaquinil. I have determined that monitoring plaquinil and an additional retina problem is too risky.
No treatment for macular dystrophy. The retina specialist says the eye vitamins will not help but I am taking 1 capsule daily instead of 2. The cause is genetic.

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Replies to "Plaquinil has been suggested to me by more than 1 physician. After reading about possible side..."

Hi, I took Plaq for 7 years when in my 20s for discoid lupus. Ive been taking it now for PMR for almost 2 years. Frankly I can't tell if it helps or not. It is a very safe drug though and much of the eye warnings are obsolete. I still couldn't taper more that 1mg a month, and I threw in low dose naltrexone, which also has no discernable benefits.
Methotrexate OTOH has been shown to have zero benefits in PMR, a new study.