← Return to Anyone have or heard of MDS with 5q-syndrome?

Discussion
Comment receiving replies
@lindamarf

Yes, I have MDS5q- and I did not want to have a bone marrow transplant, etc. I was diagnosed in December of 2023 and it didn’t become aggressive until early summer of 2024. I’m now dependent on blood transfusions every two weeks or so when hemo is in lower 7s. Finally, I’ll get to my question! I am a 77 yr old woman.and in Pallative care. I have had 7 blood transfusions which make me feel great. My oncologist tells me that the transfusions will stop working at
15 to 20 times as my body will recognize its foreign, etc. I cannot find any info stating that. Is anyone heard this? Thank you so very much for your time and care. Linda

Jump to this post


Replies to "Yes, I have MDS5q- and I did not want to have a bone marrow transplant, etc...."

@lindamarf, I hope you saw the helpful reply from @marco88 (Lee) about transfusion and risk of iron overload, sometimes referred to as secondary hemochromatosis. Here's some information that helps to explain:

- What to Know About Iron Overload If You Have Myelodysplastic Syndromes https://www.healthline.com/health/mds-and-iron-overload

Is this what your doctor was talking about?