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Switching cardiologist

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (7)

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@hncm

So far (diagnosed 3 months ago) my first cardiologist back in October, '24, never mentioned or wrote down the specific words "hypertrophic cardiomyopathy (HCM)" which would have REALLY helped me because I didn't know then NOT try to clean up hurricane debris in high heat and humidity in FL along with NOT hydrating enough in Nov. '24, putting me in the ER and hospital with a heart attack (heart "injury"?), and then my second FL local cardiologist not pre-reading my copious medical records after hospitalization and telling me what I've already read in my own records--what a waste of time! So when I return to MN in May, I'm going to try to find a good HCM cardiologist at Mayo!!!It'll be a 3 hr roundtrip drive to Rochester every visit, but worth it if I find a cardiologist who is knowledgeable and current with the rapid increase of research and improved diagnosis and treatment for HCM. Frustrating, right? And everyone, isn't it amazing that even though the rate of HCM is 1:500, that the public and even many "cardiologists" and "especially primary care physicians" do not know research and practice for HCM??? Seriously?? I'm only a retired school teacher and even I can read and comprehend the research!

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Replies to "So far (diagnosed 3 months ago) my first cardiologist back in October, '24, never mentioned or..."

Yep been misdiagnosed for years! Local hospital said i had early signs of cardio vascular disease put me on carvedelol, it wasnt till i had two back to back heart failures a month from each other the first being misdiagnosed as pneumonia
The cardiologist said i had LVOTO and that the hospital visit a month earlier had nothing to do with my heart!
Thankfully the attending doctor stayed back with me after the cardiologist left and let me know she disagreed with his diagonais.
I went to the mayo and was diagnosed HCM with severe LVOTO 122mmHg gradient stressed.
After 3 weeks of camzyos gradient 31mmHg
Surgery is being planned due to the 430 mile one way to go to mayo