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Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (7)
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Replies to "So far (diagnosed 3 months ago) my first cardiologist back in October, '24, never mentioned or..."
Yep been misdiagnosed for years! Local hospital said i had early signs of cardio vascular disease put me on carvedelol, it wasnt till i had two back to back heart failures a month from each other the first being misdiagnosed as pneumonia
The cardiologist said i had LVOTO and that the hospital visit a month earlier had nothing to do with my heart!
Thankfully the attending doctor stayed back with me after the cardiologist left and let me know she disagreed with his diagonais.
I went to the mayo and was diagnosed HCM with severe LVOTO 122mmHg gradient stressed.
After 3 weeks of camzyos gradient 31mmHg
Surgery is being planned due to the 430 mile one way to go to mayo