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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (115)

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@stickball1

My platelets were over 600 and approached 1000 before being diagnosed with ET /JAK2.
Initial dosing was 500 mg/day of HU. After 6 weeks my count went to 350 and my hematologist lowered the dose to 500 mg four times a week. I’m holding at that number for over 6 months. All other blood counts, RBC, WBC are normal. No side effects except for two squamous cell eruptions on the top of both hands. Not sure if this is HU related as I’ve had issues with skin cancers in the past. Not sure how my immune system will respond if I get a URI or any other type of infection.
I was informed by my GP that this years flu shot is the wrong one for the current virus, so wearing a mask in public places is a good idea,

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Replies to "My platelets were over 600 and approached 1000 before being diagnosed with ET /JAK2. Initial dosing..."

We all respond to HU so differently!!i started out at 1129 and after 6 months it has only come down to 615. I envy your results😊