← Return to New HPV-16 back of tongue cancer diagnosis and treatment to date

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@diacona

Your treatment log is spot on to what I have been through. My story is pretty much a mirror of yours, I started with an annoying low level sore throat that was hanging around for about a month and a half that I attributed to the CPAP I started using again. I waited too long to be seen by my primary on at end of July 2024, got fast tracked to ENT who called the ball...HPV P16 even before confirmed by biopsy. Then then first visit to Chemo/Medical Oncologist, then to Radiation Oncologist who scheduled first treatment to begin on September 23rd, 2024. I did 6 Chemo cisplatin and 33 Radiation treatments. Would've done 7 Chemo but WBC was too low. The ringing in ears started at week three and second half a chemo was carboplatin. I have been recovering since last treatment on Nov. 7th, 2024. It has been a tough road, the ringing in ears frequency has increased as long with all the other side effects you so nicely described. I am in Physical therapy for lymphedema and speech language therapy for swallowing. I just transition to long time disability on Jan. 15, 2025. PET scan happens on Feb. 10, 2025. Praying for clean scan. But again your description is spot on for this protocol. Thanks

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Replies to "Your treatment log is spot on to what I have been through. My story is pretty..."

Praying for you to have clean PET scan!! That will be huge and I am sending all the posityvibes that I can for you! Glad the week by week was helpful.
I just completed 2 weeks post-ending treatments and my swallowing/throat pain appears near an end. Couldn’t have done it without Gabapentin and hydrocodone/Tylenol mix though.

Hi @diacona Welcome to our Head and Neck group. It takes a long time to heal from this. Courage.

Hi diacona. Praying for you to have great result on your Pet scan on Feb 10. Mine is Apr 10👍🙏🙏☘️☘️ sorry you have had a difficult time post end of treatments.
Do you have any ability to taste food or drinks yet?