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What’s the youngest person to have MAC?

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (29)

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@sueinmn

Welcome to our helpful group. Can you tell us a bit more about your lungs - have you got bronchiectasis, asthma, Cystic Fibrosis or another lung condition? Do you have a history of pneumonia or other lung infections?

If I were you, I would certainly seek a pulmonologist experienced in treating MAC - this is a rare infection, and extremely rare for someone your age, so it is important to get the best help possible to beat the infection and learn how to avoid reinfection.

The hole in your lung is referred to as a cavity, and these sometimes close up when the infection is controlled, so unless it is particularly severe, or the infection is isolated to only that area, I would hesitate to do it before trying antibiotic therapy.

Finally, yes, 18-24 months is the typical length of time to take the 3 or 4 antibiotics for MAC. Mycobacteria are very slow-growing, and good at hiding in biofilm where they are difficult to kill.

This discussion contains lots of good links to information about MAC:
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/

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Replies to "Welcome to our helpful group. Can you tell us a bit more about your lungs -..."

Thank you Sue. During childhood my typical colds would usually turn into bronchitis but this subsided in my adult years. I have always had more of a productive cough or laugh. Seems like there is always some sort of phlegm there. They have done some breathing tests that show I don't have asthma and never had problems for the 16 years I played competitive sports. After the broncoscopy they also stated I have pneumonia which sounded like a result of the MAC. When I had my daughter in 2018, they tested me for being a carrier of cystic fibrosis which was positive. However CF seems very serious and that I would know by this age that I have it.

From what has been shown on the CT scans the hole in my right upper lung is very large and they are worried the antibiotics will not be able to get in there. The surgery was also discussed as a way to decrease the amount of treatment time.