← Return to My PD life is confusing - this is not easy. How do I accept it?

Discussion
Comment receiving replies
@bruizersmom

Most definitely not!!! When I had my 3rd Grand Mal seizure, my life changed. The seizure was different...very colorful, very loud, my brain was constantly screaming and buzzing, I had all kinds of visual things going on as well as waving arms, tapping feet....I didn't know when I was talking out loud versus to myself, kept yelling at everyone "Am I dead, now??" Since then my Parkinson's (I guess) has been more active, especially the psychological aspects of it. I was forced to find my own solutions, because I got no understanding in the hospital, no help, and then no help from any kind of doctor out of the hospital. You just have to live insane or fix it yourself, by trial and error. 3 times I was discharged from the hospital even tho I still had a screaming, loud brain, no ability to concentrate, and my legs were still dancing by themselves.
No help. Just frustration, which I guess is my primary complaint, one year later.

Jump to this post


Replies to "Most definitely not!!! When I had my 3rd Grand Mal seizure, my life changed. The seizure..."

Congratulations on the progress you have made, @bruizersmom. I can understand your, "primary complaint." The after-effects of your stroke sound very difficult. Were you ever offered any post-stroke physical therapy or speech therapy?