A little about my health. I have HCM with obstruction, I have had 3 ablations over the past few years. I have an ICD. I started the doubled-blind trial on 01 March 2023. Then started the active drug (aficamten) on 19 February 2024. I haven't got the double-blind results back yet but I believe I was on the Placebo. Prior to taking the active drug my life style was very limited. Since taking the active drug I have noticed great improvement. As I a stated in my previous post I was at my hospital yesterday for my 12 week follow up. I was going approximately once a month last year but now the visit are getting further apart. I was notified yesterday that I can now televisit if no issues but will have to come in 6 months. I was also told that they will be adding an additional 900 people for the trial worldwide and in hopes of the FDA approving aficamten this fall. I'm not sure that will happen but I think they are working toward that date. Even though I am feeling better and in my opinion doing well the echo yesterday showed my gradient level had increased. My doctor had concerned about this and mentioned the septal myectomy . I still have to process that though. I am currently taking 20 mg per day with no side-effects for myself.

I am very new this this forum stuff, so if I have left any thing out anyone wishes to know please just tell me. If I provided to much information let me know that as well. If I can provide anyone with more information just ask, I have found it is hard to find information on HCM especially personal details that are not readily available.