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@coachgail29

I have had clusters just about every other year for 30 years. New headache specialist suggested a 3 doses of Emgality. I'm a little hesitant but not sure what else to do next time they hit. Mine are more cervicogenic, so they said, but I rock back and forth, bang my head and scream. The headaches no longer stop on their own (tried fighting for 2 hours) and they hit a couple of times a day. To stop them, I have to use the sumatriptan injections. However, I give myself half doses of 6mg vials (not auto injectors). I have the kind that has two vials and they clip into a blue container. I hook the injector onto a vial and spin to pop the dose up, and then spin it backwards so I can pull it the rest of the way out with my hand. I put the needle in my arm and use a q-tip to push the black stopper down halfway. The next round I use the same needle (only 3mg left) and push that into my arm with the actual injector. That gets me 4 shots out of the two vials. Can't use too many per day because they will rebound. To stop a cycle I have to get facet injections into my C2-3. Something triggers my muscle and it pinches the nerves. The spasm will only stop with a steroid injection. Not sure why these headaches exist but they are truly hell on earth. I also belong to the cluster headache website but not sure how to go about getting mushrooms. I heard years ago that it works but never looked into it. You would think with technology and medications today, we would be able to put an end to this hell.

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Replies to "I have had clusters just about every other year for 30 years. New headache specialist suggested..."

I have used the Emgality at the cluster dose. Didn't experience any problems from it at all. Honestly, not sure how much it worked or not, but worth considering if your doctor recommends it.

I have used the Emgality at the cluster dose. Didn't experience any problems from it at all. Honestly, not sure how much it worked or not, but worth considering if your doctor recommends it.
Oh, I have always felt like my neck and the clusters were connected. But my C2-3 facets are fused so they can't do an injection there. They said they could try C3-4 but I've been afraid to do it. How long do they work for you?
Also, have you gone to Clusterbusters, I think it is clusterbusters.org. If you get an account with them you can check out all the "busting" details on their forum. I haven't tried it, but you might get the mushroom details you are looking for.