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@debhammel

My hematologist wanted the bone marrow biopsy first to confirm the ET diagnosis before starting me on HU. He wanted to be sure I didn’t have some other blood disorder or leukemia before starting on HU. And higher age correlates strongly with having a higher risk for stroke or heart attack with an ET diagnosis which is why we are considered high risk at age 65.

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Replies to "My hematologist wanted the bone marrow biopsy first to confirm the ET diagnosis before starting me..."

Mine did the same except I'm low risk because I'm 48 & never had any issues. I do have family members that had leukemia so they checked a bunch of genes for any type of mutation.

Hi debhammel,
Thank you for posting. Yes, I really do want a bone marrow biopsy first to make sure I do not have something g else. It sounds like you have a good doctor. I sent questions to the oncologist/hemotologist I was referred to and my first question was why I was not getting a bone marrow biopsy to confirm my diagnosis. I am still waiting for a reply and so hope I get one from her. I also asked how many patients this group has treated locally here and how many she has treated herself. I just really need to know that in the event I am expected to just take Hydrea without really knowing I have that. Granted ET is the lesser of the evils to have, but I would just really like to know the answer. I am not sure if your age, but I assume similar to mine. If you do not mind sharing, did you have any gene mutation such as JAG2 as that is all I have been tested for and mine is negative.