← Return to Spinal cord stimulator support

Discussion

Spinal cord stimulator support

Chronic Pain | Last Active: Jan 28 5:35am | Replies (57)

Comment receiving replies
@greg72

Good morning,
I'm on my second stimulator since 9/2020. The first one was an Abot and I felt like a new man right after installation. Unfortunately one of the leads moved/migrated and starting hitting the wrong area and had to be removed. At the same time a staff infection developed and caused even more issues. My SCS was covered by workers comp and they decided to make me wait 6 months before allowing Drs to remove it. The infection grew worse and worse because meds weren't killing it. After removal and fighting what remained of the infection a year later I had my Nevro SCS installed. It has been doing well and Nevro enables you to put leads in 2 different locations and not need to be close to each other. This one has been in 2 yrs and now it needs to be removed and another installed due to lead migration again. This time both leads moved and moved really far from where they were out.
Drs not sure why they moved and how they moved so far and let me say I don't do anything that strenuous. We have a small 10 acre property that I make a small garden say 15x30 and mainly raised beds to eliminate bending. We have a couple cows but again not strenuous.
What I will tell you is the SCS has greatly helped my sciatica pain in both legs. It has helped make some of my back pain better but it didn't hide all of it. I'm on a daily dose of pain meds to help as well and have muscle relaxers of needed.
The Drs said I have 7 injured disks but they removed the 2 worst and fused my L3-L5 and did a lamenectomy back in 2015. I'm also listed as failed back surgery syndrome and had several complications after surgery even being paralyzed for 2 days.
My goal with the SCS was to lower the amount of pain and get back to an active well more active life style. Unfortunately in my case my life style hasn't improved much and the pain is back. Hopefully by replacing it again I will get more relief and have a better daily life but even with it being messed up I am still getting some relief.

I just don't understand why the leads keep moving on me. Is it doctor related or just do I need to do even less then I do now. Please don't take my comment as negative because as mentioned it has given me some relief and even some is better then I was prior to the SCS implant. Definitely recommend doing a trial for anyone who may need one and see how it works for you. I definitely recommend asking the Drs if you will feel the stimulation when it activated. Will you feel the vibration or not. Abot device you would feel it, Nevro is designed not to feel any vibration if you prefer not to feel it or they can set it up so you do feel it as well.

Jump to this post


Replies to "Good morning, I'm on my second stimulator since 9/2020. The first one was an Abot and..."

@greg72 it does seem like there’s a lot of leads moving makes you wonder why they can’t put a little slack in them. I had the permanent stimulator put in the 14th I had them readjust it Tuesday then again today she said this is the last adjustment until Wednesday when I see the doctor . My leads moved and I’m not active I bent over to pick a magazine up after being miserable for a 1-1/2 it was so nice being 95% pain free I forgot about bending it was even helping my neck which it shouldn’t they said. I’m praying they can move the wires . I’m not sure how insurance works since I bent hopefully it covers it. I have the Boston-Scientific I don’t feel it which concerned me not knowing if it’s working other than the pains gone. Not knowing if it’s turned too high the first day they removed the trial both of my calves cramped for 2 weeks, and then when my wires came loose on the permanent one calve cramped badly. Have you noticed that with yours ?