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Clinical trial

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 26 10:06am | Replies (17)

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@hillbilly1065

I am currently on the trial drug aficamten. I go to the hospital tomorrow for my visit.

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Replies to "I am currently on the trial drug aficamten. I go to the hospital tomorrow for my..."

@hillbilly1065 Good luck with your visit. Please keep us updated. Is it still a double-blind kind of trial or do you actually know what you are getting? If we have 1000 people on this HCM forum, I'm willing to bet 900 of us are keenly interested in the possible arrival of another medication. As I've said to others on this forum (including just above), I have great admiration for people like you who are willing to put yourselves out there for research to benefit so many other folks like me!

How long have you been on it and do you feel any improvements? I’m in my 5th month of the trial.