1. < Polymyalgia Rheumatica (PMR)

Anyone else have strange neurological symptoms with PMR?

Posted by abbeyc @abbeyc, Mar 26, 2022

I’ve had PMR for 3 months. In the last month my hands have become shaky and I am always dropping things. Fingers feel a bit stiff. toes and feet tingly also. Anyone else? Is this the Prednisone or the PMR? My Rheumatologist not correlating to either.

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marmak | @marmak | Nov 11, 2023
In reply to @ccharlotte "My hands have become shaky, but my entire body also feels as if I’m shivering from..." + (show)
@ccharlotte

My hands have become shaky, but my entire body also feels as if I’m shivering from the cold, although I’m not cold nor can you physically see the feeling of shakes. Seems to start late afternoon/evening

Anyone have similar experience?

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Yes, but tends to start early morning, and improves somewhat by the end of the day. It seems to be related to weaning for me, when close to changing over to the new dose completely after walking it down for a few weeks.

REPLY
sharon44r | @sharon44r | Jan 20 10:34am

Yes I am having tingling and shaking in hands but I’m not sure it’s from breast radiation or my pmr. I have always had neuropathy in my feet. I’m trying to, squeeze on a soft rubber ball now to see if that helps 😬.
Don’t think it’s the prednisone either,

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urnsnowdust10 | @urnsnowdust10 | Jan 22 12:04pm

Chek out Neurophy,I've have PMR also taking Prednisone ,my Neurophy started in my feet & workimg up my legs & hands @ 90 yrs old
Were u ever exposed to 24D weed killer back in the 50 & 60s ?? May be the cause of my trouble.

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 22 3:17pm
In reply to @urnsnowdust10 "Chek out Neurophy,I've have PMR also taking Prednisone ,my Neurophy started in my feet & workimg..." + (show)
@urnsnowdust10

Chek out Neurophy,I've have PMR also taking Prednisone ,my Neurophy started in my feet & workimg up my legs & hands @ 90 yrs old
Were u ever exposed to 24D weed killer back in the 50 & 60s ?? May be the cause of my trouble.

Jump to this post

Welcome @urnsnowdust10, Sorry to hear you have neuropathy along with your PMR. You mentioned being 90 years old. I'm 81 and my neuropathy symptoms started in my toes when I was in my late 40s to early 50s and have worked it's way into my feet and legs some. I'm fortunate in that I only have the numbness and some tingling and no pain. Do you have pain with your neuropathy?

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