Plasma Cell Leukemia

Posted by Kris Mikkalson @krismikkalson, Jan 20 8:59am

good day,
has anyone here been diagnosed or had family diagnosed with PCL?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@hopeful33250

Hello @krismikkalson,

As Lori, @loribmt, said your family is experiencing a lot of health issues right now and it must be stressful for all of you. You mentioned that your mom was recently diagnosed with Parkinson's. If you would like to get some support for your mom's PD, I would encourage you to take a look at our PD support group on Connect. I am the mentor of this group and you might benefit from the members who post. Here is a link to the discussion,
--Living With Parkinson's Meet Others..
https://connect.mayoclinic.org/discussion/living-with-parkinsons-disease-meet-others-come-say-hi/
Has your mom started taking medications for her PD?

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and yes my mom is taking her meds for PD. we just had a neuro appt earlier this month and have determined right now that meds and PT are helping and the doc is fine keeping her on them for now. she's still in the early stages of PD as well but my sister and i both can see a difference.

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@krismikkalson

i believe i'm following that group but haven't had a chance to say hi. By chance is there a way this can be viewed etc from outside the clinc walls? external site etc that i can put my mom onto as well. i log in via work since i'm an employee but i know my mom is having a hard time with her diagnosis and could use support especially since she's my dad's primary care giver. my dad struggles to let us "girls" help him and admit to us anything is wrong, but thankfully my mom is more open to help and allowing my sister and i to go with to appointments etc and stay informed on her care at least.
thank you so much for reaching out. these forums have been such a blessing.

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@krismikkalson
I'm glad to hear that your mom is open to getting support. If your mom can access a computer/laptop/iPad or Smartphone. You could help her set up her own Mayo Clinic account and she can post messages and read messages on her own.
Do you think that is possible?

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