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I take 5mg Camzyos in the morning.

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 24 8:05pm | Replies (26)

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@joanallione

Thank you so much for sharing your experience. Your improvement is amazing. I took my first dose last night and was awake most of the night feeling things changing in my body. I could feel my heart relax and the tightness and pain that I usually feel when I get up in the morning, wasn’t there this morning I do have a bit of a headache. Do you increase your water intake with this medication and what are you going to do about the weight gain? Have you talked to them about that?

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Replies to "Thank you so much for sharing your experience. Your improvement is amazing. I took my first..."

Yes i had the frontal head aches that would come and go less now.
The palpitations would wake me up at night thinking my heart just stopped that has subsided
I talked to my primary doctor and he thinks im retaining water
I will talk to the cardiologist on the 4 th but they are aware of my weight gain.
I was told to drink at least 62 oz of water per day
If i dont drink enough my heart will have palpitations
It will take getting adjusted to the meds bit make sure to talk to ykur cardiologist on ykur symptoms
Keep a daily log
BP
O2
Weight
Exercise
Physical and mental changes

Hope the meds treat you as well as they have treated me