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I take 5mg Camzyos in the morning.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 24 8:05pm | Replies (26)Comment receiving replies
Just listen to your body and report any side effects
Been on 5mg for 6 weeks now.
Some of my side effects for the first fee weeks
Feeling of syncope especially after eating
Palpitations come and go
Increase of urination
Probably because of water intake
Alcohol intolerance
Weight gain
Feeling of puffiness in upper body
After 6 weeks
Syncope is gone
Alcohol intolerance still the same 1 beer and im done
Puffiness still there
Weight gain still gaining
Palpitations still come and go though not as frequent
Urinating frequency under control
Since im active person
I have gone in 6 weeks time from couldnt ride my mountain bike to 14 miles
Nov 0 miles
Dec 41 miles
Jan as of today at 101 miles
Miracle drug for sure
In three weeks of being on the camzyos my gradient
Went from 122 mmHg
To 31 mmHg
I go back Feb 3 for new imaging
Good luck and take it one day at a time
Replies to "Just listen to your body and report any side effects Been on 5mg for 6 weeks..."
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Thank you so much for sharing your experience. Your improvement is amazing. I took my first dose last night and was awake most of the night feeling things changing in my body. I could feel my heart relax and the tightness and pain that I usually feel when I get up in the morning, wasn’t there this morning I do have a bit of a headache. Do you increase your water intake with this medication and what are you going to do about the weight gain? Have you talked to them about that?