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on the fence with decision-making

Transplants | Last Active: 11 hours ago | Replies (11)

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@glover

Hi Lisa,

This is my fourth attempt at responding to your post. I feel for you and your situation, remembering where I was nearly a year and a half ago. So, here are a couple of internet-safe thoughts.

I understand the loyalty to the place that saved your life. (I still look forward to visiting Mayo.) But, your liver's a big deal. Second opinions are normal and can be helpful to you. The more information, the better. If you don't like Mayo, you can always return to Banner.

If you do decide on having a transplant, mindset is everything. You need to be confident in your information, your medical team, your support, and yourself. It can be scary, no doubt. You'll need all of them, and then some, when the time comes. But, if I read it correctly, you're in the 5%, so you'll be just fine. 🙂

Getting on the transplant team's radar is not a bad thing. I went through the evaluation process twice: once in Boston when I lived in NY and again at Mayo-Jacksonville. My answer in Boston was not yet; I was still too healthy. However, that evaluation work supported my Mayo evaluation, which aided in getting listed. So, you may not get listed, but you'll have a baseline if things get worse. And you'll get a better understanding of how your other medical issues might impact/influence the possibility of a transplant.

You're in my prayers.

Dave

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Replies to "Hi Lisa, This is my fourth attempt at responding to your post. I feel for you..."

oh my Dave you have me in tears. This was beyond helpful and so informative. You just answered a few questions I had. Part of my indecision is getting a response that would eliminate me on other health complication's. I do need to feel very confident and comfortable with my team if and when it comes to that, that will help me stay in a positive mind set. Thank you from the bottom of my heart for commenting on my post and I can never get enough prayers. My prayers are with you as well.

Lisa