← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@joanallione

Thank you im 77 and about to start Camzyos nervous about it.

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Replies to "Thank you im 77 and about to start Camzyos nervous about it."

I appreciate your nervousness using a newish heart drug. I was too, however the alternative of being so tired that I just wanted to give it all up overcame the hesitation. My echocardiogram results supported my feeling that I had my mojo back! I started off at 5 mg went down to 2 1/2, but then went up again to five when I could tell the difference with a half dose. I haven’t had any side effects from camzyos that have disrupted my life. I do tend to sleep a lot but I have given up the two hour naps in the afternoon pre-Camzyos. I am so grateful that I had a cardiologist (in Canada) who thought that I was a candidate for the drug. Each visit I give him my thanks. Ask questions of your SBM support nurse and your cardiologist. They have had some experience now with the results of the drug. This Mayo Clinic group of wonderful people has been an endless source of support and information. Welcome aboard.

Any tips about hydration or nutrition while taking CAMZYOS would be helpful also, does anybody have the experience of getting a headache?