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I take 5mg Camzyos in the morning.

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 24 8:05pm | Replies (26)
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@joanallione

I’m takng my first dose of Camzyos tonight and i’m really nervous. My body is sensitive to medications and i don’t know how I will react. I wish I had a buddy with more experience nearby. 🤗

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Replies to "I’m takng my first dose of Camzyos tonight and i’m really nervous. My body is sensitive..."
brumasterj | @brumasterj | Jan 22 10:19am

Just listen to your body and report any side effects
Been on 5mg for 6 weeks now.
Some of my side effects for the first fee weeks
Feeling of syncope especially after eating
Palpitations come and go
Increase of urination
Probably because of water intake
Alcohol intolerance
Weight gain
Feeling of puffiness in upper body

After 6 weeks
Syncope is gone
Alcohol intolerance still the same 1 beer and im done
Puffiness still there
Weight gain still gaining
Palpitations still come and go though not as frequent
Urinating frequency under control

Since im active person
I have gone in 6 weeks time from couldnt ride my mountain bike to 14 miles
Nov 0 miles
Dec 41 miles
Jan as of today at 101 miles

Miracle drug for sure
In three weeks of being on the camzyos my gradient
Went from 122 mmHg
To 31 mmHg

I go back Feb 3 for new imaging

Good luck and take it one day at a time

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